Making sense of multimorbidity and a better understanding of the burdens we carry.
This tool sucks. Not the questions, those are well researched and vetted by people with PHDs and by people that give people PHDs. And not the UI. I spent a bunch of time to make the tool easy to use. What sucks is the process. The questions that we ask are hard. Not necessarily individually hard, but hard in aggregate. It’s hard to see all of your “stuff” laid out in front of you. Also, the final score sucks. Some people will feel crappy because their score isn’t high enough and doesn’t reflect their internalized level of encumbrance. And some people will feel REAL crappy because they will have a very high score. When you’ve spent your life treating your mental health like we choose a diet, we end up with a very incomplete and disconnected idea of how we are really doing mentally and how much we are actually carrying cognitively and emotionally. Most doctors and therapists were trained to identify a disorder and then work to treat that disorder. Without thinking about how co-occurring disorders, trauma, life experiences, etc impact that disorder or the treatment plan.
So, this tool sucks in that way. It will make you see all your shit all at once. And if you are fortunate enough to be working with a good therapist, it will suck when you recognize that your current treatment plan is only scratching the surface of all the shit that you probably need to deal with. So, it sucks. Don’t use this tool if you aren’t prepared for it to suck, one way or the other.
So with that out of the way, and also the usual disclaimer about how I’m not a doctor and this tool isn’t an official diagnostic tool in any way, please, enjoy the following questions! Click Here for the Survey!
To read about how this survey came to be, and the journey that brought me here, click this link. I'll also share some links to some research that I found during this process which added some credibility and research to this idea that I thought only I had. .
Contact 'encumbrancescore at gmail dot com' to get more information on the project.